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Brothers with rare degenerative diseases stimulate each other and help each other

A B.C. Rare degenerative brothers and sisters have lost their eyesight from an early age, but they do not prevent them from participating in their favorite activities while stimulating and supporting each other through challenges. Hmm.

Chase Henderson loves basketball and is slowly losing sight, but it fits snugly.

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The 10-year-old basketball practice of him and his companions looks exactly as you would imagine. From anywhere, imitate a prominent foul just for fun.

"I think it's a superpower. I have bad eyesight, which makes my smell, ears, and touch stronger," he told Globalthis in BC. rice field.

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Chase and his 16-year-old sister Ava were diagnosed at a young age with a rare degenerative disease called Stargardt's disease.

"It was really hard. It was really, really hard, and it wouldn't be easy to hear it a second time," explained her mother, Christina Henderson.

Each child is at various stages of vision loss. Chase's acuity is diminished, and Ava is legally blind. Both are doing their best to adapt to their daily lives.

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"They won't complain. They won't complain about it," said their dad Burt Henderson.

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Throughout everything, they have shown amazing strength and support to each other.

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"She really tells me everything, so I have nothing to tell her." Chase said with a smile.

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In addition to basketball, Chase also plays hockey. It has its own challenges.

But he still has enough vision to achieve some great goals. However, he may not know that he is on the net until he hears the cheers. He lost his total number this year.

"A lot, yeah, let's say a lot," he said with a laugh.

Ava has been dancing for the past 12 years, despite facing many difficulties.

"I couldn't see all the light shining on my face and I had hit people on stage before, and I almost fell off stage," Ava said.

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Henderson plays a major role in local fundraising events, sharing emotional stories to support therapeutic research. ..

"She has worse eyesight than I do now, so I'd rather have better eyesight than I do," Chase said in a video produced by Fighting Blindness Canada.

"It's difficult to do that just because I know I don't have as many opportunities as other kids," Ava explains later in the video.

But they still have very big dreams and their path will be a little different. Both are always moving forward with an incredibly exciting attitude.

"There are ways, so we need to find a way to reach our goals," Ava said. "Some would say it can't be done, but I'll prove they're wrong," she added.

"It's better to be different than to be the same as everyone," Chase said. "It's boring."

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