Rachel Hachi is not the life that imagined children growing up and fighting a sun illness calledRothmund-Thomson Syndrome (RTS).
Her daughter Jace was diagnosed at 20 months and her son Nicholas was diagnosed at age 8.
"This is a rare cancer-causing syndrome, with 300 cases recorded since 1856. RTS," says Hachey.
She said the syndrome made both children more susceptible to bone and skin cancer, resulting in short-lived and many medical disorders.
Children with RTS need to limit their time in the sun as their bodies can overheat rapidly, slowing their growth and experiencing bone pain. You also need to have a cancer screening.
On warm, sunny days when most kids are playing outside, Hachey needs to hide from the sun with special care to protect themselves from terrible medical consequences. I said there is.
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"They know everyday life, such as sunscreen, good skin care, and outdoor time limits. They really are the hands they were given out. I made the most of it, "Hachey said.
Despite her mother's best efforts to avoid her cancer diagnosis, 14-year-old Jace said this June with osteosarcoma, a malignant bone tumor of her left knee. I was diagnosed. The worst nightmare. "
" We are fighting for her life, "she said.
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"For us, this is the way we know. In 2001, my eldest son had a malignant brain tumor. Because I lost, so hearing those words again .. it's just overwhelming that we can lose another child, "Hachi said when her eyes swelled in tears. rice field.
She continued to say that Jace's cancer diagnosis was delayed due to COVID and her knee pain increased. Her long wait only added to the stress of her family.
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But Hacheys is now Heading to Saskatoon, stay for 12 weeks of chemotherapy and subsequent knee surgery. Because of her expensive stay, sheshe started the GoFundMepage and started asking the community for help.
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Hachey says her family needs to spend a considerable amount of money on the hotel along with other travel and living expenses. explained.
Jace's treatment will keep her bee away from her job as her nurse. She added that, despite their financial concerns, her mother needs to be next to her daughter in order to support her as much as possible during the Battle of Jace's Cancer.
"What they want to see in a tumor is basically that 90% of the tumor is dead, so after surgery to preserve the limbs or after Jace loses his leg. Decide if you want to have additional surgery. Chemotherapy, "Hachi said.
She said osteosarcoma is a type of cancer that can spread to the lungs and other bones in the body, requiring additional weeks of chemotherapy after surgery on her knee. rice field.
According to Jace's doctor, she has a 70% chance of fighting cancer and can help her family remain optimistic.
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