An influencer suffers froman ultra-rare diseasewhere new bone grows in his bodyand is trying to find a cure.
At the young age of 16, Enrik Sulaj was diagnosed with fibrodysplasia ossificans progressis (FOP). It is a disease in which new bone forms outside the skeleton in an uncontrolled manner, resulting in complete limitation of movement.
AlbaniaHis 20-year-old is 'lucky' to have developed the disease later than others, despite his condition The Daily Star reports.
However, he admits that this is also a downside as it limits his adult lifeand this ugly condition makes it difficult for him to speak, eat and breathe. He said it could lead to difficulties.
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Enric Suraj)} Image:
Enrik Sulaj)The hardworking Albanian who has amassed more than 40,000 followers on Instagram now wants to raise awareness of his condition.
It leaves various struggles in his daily life.
Also, despite his growing popularityonline, Enrik shockingly stated that some people didn't even believe his diagnosis, saying: is added as “I think most people don't know much about it, but some of them don't believe what I'm saying. He was diagnosed in Genoa, Italy, in 1999.
He then moved to Spain, where he remained for three years as part of a clinical trial.
Of the time spent there, Enric said: 80} "I appreciate what they are trying to do and help us, but it was of no use to me. My condition is
"Clementia has done a great job creating a three-step experimental treatment. With so many pharmaceutical companies competing, it is difficult to bring a successful treatment to market."
''There is currently no cure for this disease, but I am sure that in the future, from such a wonderful country as Great Britain, I will be taken into account.
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Enrik Sulaj)Enrik added: "We appeal to all scientific and medical institutions and professionalsto support the much needed treatment of this disease. That's why I'm hopeful that pharmaceutical companies will make medicine for my illness.
''I'm trying to forget my situation, so I'm having a good time. Not all.
The successful launch of his SocialMediaLucky business has given him at least the confidence to accept rejection and move forward with his head held high. rice field.
Enrik added: "The good thing is that you have the courage to talk to the girls you like. Most girls either refuse to talk or just want to be friends. It's their choice and I respect that."
