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My transplant opened my eyes to the need for organ donors

(CNN)My CNN colleagueRichard Rossrecently needed a kidney transplant. This is the second time in nearly 25 years. The email announcing that he had the organs was very grateful to his donorand made me smile and cry a little.

I was happy over the moon in Ross. Not only is he alive, he is a recipient of human tenderness and witnesses it. Organs are a limited resource, as are donors (living and dead) who are willing to share them.

I also have a donor to thank me.

Five months ago, a young man I had never met saved my life. Suddenly, my liver stopped functioning unexpectedly and I was told that I needed a new liver to survive. My doctor suspects that there was a toxic reaction to the drug I was taking to treata rare, newly diagnosed conditionI said "Status 1A It was considered a patient with "". I mean, I wasn't. There are months or even weeks to wait for a new liver.

It took a few days before I fell into a coma and was more likely to die.

However, surgeons, social workers, and managers have taken action. In the next few days, they came across the liver from a young man who was the best match in terms of organ size, blood type, and other factors.

The time frame for transplanting his liver was 8-12 hours after his death. Thankfully, he has stated that he wants to be a donor, or his family has made that decision. After many conversations, tests, and almost eight hours of operation, my life has changed forever.

Timing is everything

Like Ross, I was full of gratitude-even more so as I knowI Blacks and people of other colors likeare less likely to receive an organ transplant than whites.

Thank you very much. Organs are not just gifts. And there is no guarantee that it will work properly.

I don't have much personal information about donors. Only his medical problems, age and nationality. I'd like to get in touch with his family someday, but for now I hope the thank-you note sent through the organ procurement organization that manages local organ recovery activities has been well received.

I am also grateful to the medical team. I live in an era when transplants are common and often successful. Grandaunt died of liver failure in 1959. Only a few years before the procedure for replacing such organs became possible. She was only 49 years old. The first successful human liver transplant was performed in 1963, but liver transplant patients lived for more than a year in 1967.

Currently, survival rates are high and recipients live much longer on average. There are protocols for determining who can give and receive organs, but the need has historically outweighed the availability.

I am worried that black, Latino, and low-income patients are less likely to receive an organ transplant than white or high-income patients. It also reduces your chances of becoming a donor. Reasons for this include historical distrust of the healthcare system.

I'm lucky-the porting system worked well for me. I had enough support to recover from surgery and insurance to help pay for it. But sadly, that's not the reality for everyone. Health Resources &Services Administration estimates that 17 patients per day are dying awaiting organ transplants.

I wanted to know what is preventing people in the vulnerable community from getting a transplant and what is being done to solve the problem.

I wanted to standardize my experience with the porting system, rather than feeling like a miracle.

Organ donation can be higher

In 2021,about 170 million people will bedonors in the United States It has been registered. That number, coupled with the fact that a single organ donor can save up to eight lives, seems to give hope to transplant candidates.
However, only a small percentage of registered donors actually save lives. In 2021, more than 20,000 living and deceased donors enabled approximately41,000 transplants. This number was a record high, according to theUnited Network for Organ Sharing. National transplant system under the federal government.
Still, according to the organization, more than 100,000 people are on the national transplant waiting list today, andalmost 60% are of color. Who gets these organs? Organ Procurement and Transplant Networknumbers indicate48% go to people of colorand52% go to whites

Most donors don't look like me

According to 2021 data from United Network for Organ Sharing, 30% of deceased donors Identified as an ethnic minority or race. And the number of living donors of color for those who donate kidneys, parts of the liver, bone marrow, etc. is about 29%. In contrast, colored races make up about 40% of the US population
"There are more white donors," said professor and founder. Arthur Caplanstates. Faculty of Medical Ethics, New York University Grossman School of Medicine. "They don't match the minority as whites. Therefore, biology drives more organs towards whites just because they donate more whites."

He said minorities such as Koreans, Samoa, and Tongan Americans have had particular difficulty finding organs.

People of different races match each other, but members of the same ethnic group tend to be compatible with respect to tissue, blood type, and other biological factors. A good match between the donor and the recipient leads to better results for the patient and the transplant system itself. The more people of different racial backgrounds register for donations, the more likely it is that more transplant candidates will find the organ when they need it.

Most Popular Organs

Another reason whites tend to receive an imbalanced proportion of organs is supply and demand. The kidney is the most popular organ in the United States, and according to data from the Organ Procurement and Transplant Network, about85% of the national transplant waiting list is made up of people in need of it. Demand always exceeds supply.

"Whites are more likely to be transplanted than blacks. The most common organ listed so far is the kidney, the only non-white person on the list. It is also an organ of. " Alain B, Professor and Director of the Qualitative Core Center for Applied Surgical and Transplant Research in NYU. Massy said in an email.

According to the National Institute of Diabetes, Gastroenterology and Kidney DiseaseAlmost 800,000 people haveend-stage kidney diseaseThis is the most common reason Because it requires a kidney transplant. However, for all whites suffering from the disease, the Institute reports that there are three blacks suffering from the disease.
The median waiting time for black patientsis 59.9 months, which is longer than the median waiting time for whites, 41.3 months. The median waiting time for Hispanic or Latin patients is 55.8 months.

Listed

The biggest problem is "getting on the port list". He is the Medical Director of Transplant Services at Thomas Jefferson University, and not riding it can be an obstacle to transplant fairness.

"Blacks on dialysis are less likely to be on the waiting list for kidney transplants than whites on dialysis," Massy said in an email.

Kaplan said whites are more likely to get more transplants because they tend to have better health insurance. As a result, doctors can see them and recommend them to the waiting list. Conversely, according to the Kaiser Family Foundation, blacks, Latin Americans, American Indians, Alaska Natives, Native Hawaiians, and other Pacific islanders are less likely to havehealth insurance
.

Kaplan said that inequality in general health and access to health care (problems related to the history of socio-economic status and discrimination) is who gets the organs and who needs the organs first. It also affects whether or not.

"Poor minority-Native Americans in the reservation, poor people in downtown Brooklyn, poor Hispanics like Corpus Christi, Texas. Many undocumented people," Kaplan said. .. Due to the high obesity rate, high blood pressure is uncontrolled and (they) suffer from more diabetes.

There is another cause, according to Dr. Juan Carlos Caicedo, founder and director of the Hispanic Transplant Program at Northwestern University. Most US transplant centers do not implement a multicultural or multilingual care approach.

"Only 10% of these programs have websites that translate different languages ​​other than English," he said.

According to a Caicedo study, centers incorporating multilingual and culturally sensitive care have succeeded in making more Hispanic patients a living donor.

Asian American Donor ProgramCommunity Engagement Director Mylanah Yolangco said it wasn't just about getting people of color to donate their organs. It is also difficult for people of color to find a match between bone marrow and stem cells.

"White patients are most likely to find an exact match. 79%.The least likely to match is the 29% black and African-American community, "Yolangco added. Asia Pacific Islanders have a 47% chance of finding a match, Hispanic or Latin Americans have a 48% chance of matching, and Native Americans have a 60% chance of matching.

Unfortunately, according to Kaplan, the need for transplantation between specific groups exceeds the number of organs available. He said it affects the patient's ability to find good matches, but language, class, and race are also unfair if they limit access to transplant treatment.

Accept a second chance

The point of the transplant system is to keep more people alive and healthy. Wage earners and people who do not speak English as their mother tongue.

My new liver gave me a second chance. It involves more doctor appointments and more fear of the unpredictability of life. However, I am also working to raise awareness of colored races for organ donation and to increase their affection for organ donors, especially those who have saved my life.